Items Tagged ‘HLHS’
January 16, 2020
Collaboration brings innovative regenerative therapies to babies with rare heart defect
By MayoRegMed 
A collaboration bringing together regional centers and advocacy groups to accelerate innovation and discovery is expanding, bringing clinical trials and expertise to more patients with Hypoplastic Left Heart Syndrome (HLHS) across the country. Led by Mayo Clinic’s Todd and Karen Wanek Family Program for HLHS, the collaboration began in 2017 and now has 10 members. […]
Tags: Congenital Heart Disease, Dr. Tim Nelson, HLHS, HLHS consortium, hypoplastic left heart syndrome
November 8, 2019
‘Feel the Beat’ is About Hope, Healing and Camaraderie, and it’s Easy to Dance to
Families, researchers and clinicians recently came together to raise awareness and celebrate how regenerative research enhances the lives of individuals with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart disease. HLHS is a rare and complex form of congenital heart disease in which the left side of a child’s heart is severely underdeveloped. Regenerative […]
Tags: Congenital Heart Disease, HLHS, hypoplastic left heart syndrome, regenerative medicine, stem cells
July 26, 2019
Research for Infants with HLHS Moves Forward
By Jen Schutz 
Hypoplastic left heart syndrome (HLHS) is a complex and rare heart defect present at birth in which the left side of a child’s heart is severely underdeveloped. At Mayo Clinic, physicians and researchers in the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome are looking for ways to delay or even prevent heart failure […]
Tags: clinical trial, Dr. Timothy Nelson, heart disease, HLHS, hypoplastic left heart syndrome, Medical Research, phase I trial, regenerative medicine, stem cells, Todd and Karen Wanek Family Program for HLHS
June 24, 2019
HLHS Consortium Gives Hope to Babies with Rare Congenital Heart Defect
By Jen Schutz
Hypoplastic Left Heart Syndrome (HLHS) is a rare disease that affects approximately 1 of every 4,300 babies every year. HLHS is a congenital heart defect in which the left side of the heart is underdeveloped. It occurs during fetal growth when the baby’s heart is developing. Without immediate intervention after birth, 95% of infants with […]
Tags: HLHS, HLHS consortium, hypoplastic left heart syndrome, Ochsner Hospital for Children, regenerative medicine, stem cells, Timothy Nelson
January 3, 2019
In 2011, Jared Ausnehmer left his local hospital carrying the weight of an oxygen tank and the worry of what might come next. At age 21, he’d already defied the odds for those born with hypoplastic left heart syndrome, a birth defect in which the left side of the heart is underdeveloped or nonexistent. With […]
Tags: Center for Regenerative Medicine, Dr. Timothy Nelson, HLHS, hypoplastic left heart syndrome, Medical Research, stem cells
September 27, 2018
“Feel the Beat” Raises HLHS Awareness
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome recently held the annual “Feel the Beat” event at Mayo Clinic in Rochester, Minn. In its sixth year, the event brings together families, researchers, and clinicians to learn more about and raise awareness for Hypoplastic Left Heart Syndrome, or HLHS. This year’s theme […]
Tags: Congenital Heart Disease, Dr. Timothy Nelson, HLHS, hypoplastic left heart syndrome, Medical Research, research
August 2, 2018
“Feel the Beat,” Hypoplastic Left Heart Syndrome Event – Sept. 8
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) will host the sixth annual “Feel the Beat” event on Saturday, Sept. 8 from 9 a.m. to 3 p.m. in Rochester, Minn. The event is open to everyone. “Feel the Beat” brings together families, researchers, and clinicians to learn more about and […]
Tags: Congenital Heart Disease, HLHS, hypoplastic left heart syndrome, Mayo Clinic Center for Regenerative Medicine, Medical Research, research
May 10, 2018
Children’s Hospital Colorado, Mayo Clinic Collaborate on Congenital Heart Defect
Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Hospital Colorado are collaborating to provide solutions for patients with hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of the heart is severely underdeveloped. Regenerative medicine strategies for HLHS have the potential to […]
Tags: Center for Regenerative Medicine, clinical trials, Congenital Heart Disease, Dr. Timothy Nelson, HLHS, hypoplastic left heart syndrome, Mayo Clinic, Medical Research, regenerative medicine
December 21, 2017
Research Collaboration Gives Hope for Future of Babies with Rare Heart Defect
This story first appeared on the Mayo Clinic News Network. Collaboration among hospitals across the U.S. as part of a new research consortium is giving hope for the future of babies born with a rare congenital heart defect called hypoplastic left heart syndrome. A baby from Alabama named Ryals is one of the first to benefit […]
Tags: Congenital Heart Disease, HLHS, hypoplastic left heart syndrome, Medical Research, Minnesota news release, regenerative medicine, research, stem cells, Timothy Nelson
December 7, 2017
Mayo Clinic, Children’s Minnesota Announce Congenital Heart Defect Collaboration
This story first appeared on the Mayo Clinic News Network. Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Minnesota are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child’s heart […]
Tags: cardiac regeneration, Center for Regenerative Medicine, Congenital Heart Disease, HLHS, hypoplastic left heart syndrome, mayo clinic medical research, regenerative medicine, stem cells, Timothy Nelson