Items Tagged ‘HLHS consortium’

January 16, 2020

Collaboration brings innovative regenerative therapies to babies with rare heart defect

By MayoRegMed MayoRegMed (@mayoregmed)

A collaboration bringing together regional centers and advocacy groups to accelerate innovation and discovery is expanding, bringing clinical trials and expertise to more patients with Hypoplastic Left Heart Syndrome (HLHS) across the country. Led by Mayo Clinic’s Todd and Karen Wanek Family Program for HLHS, the collaboration began in 2017 and now has 10 members. […]

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Tags: Congenital Heart Disease, Dr. Tim Nelson, HLHS, HLHS consortium, hypoplastic left heart syndrome

June 24, 2019

HLHS Consortium Gives Hope to Babies with Rare Congenital Heart Defect

By Jen Schutz Jen Schutz (@jenniferschutz)

Hypoplastic Left Heart Syndrome (HLHS) is a rare disease that affects approximately 1 of every 4,300 babies every year.  HLHS is a congenital heart defect in which the left side of the heart is underdeveloped. It occurs during fetal growth when the baby’s heart is developing. Without immediate intervention after birth, 95% of infants with […]

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Tags: HLHS, HLHS consortium, hypoplastic left heart syndrome, Ochsner Hospital for Children, regenerative medicine, stem cells, Timothy Nelson

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